New York children with Duchenne muscular dystrophy are being denied access a gene therapy that is FDA-approved and life-saving for many kids. This treatment has helped children walk again, ride bikes, and live more independently.

But now, New York state and insurance companies are trying to block coverage.

Healthcare logo with the words 'Healthcare Equality Network'

We’re asking Governor Hochul to step in and ensure coverage for all kids who qualify under FDA guidelines, not just a select few.

Call Governor Hochul’s office today and urge her to stand up to the insurance industry and state bureaucrats to restore equitable access to rare disease treatments for New York families.

CALL GOVERNOR HOCHUL NOW!